News

The Super Parents: Exhibit highlights caring for children with special needs

Photos show constant care, crushing paperwork -- and deep love

April VillafaƱa and her daughter, Isabella, at their home in San Marcos. This is one of the photos featured in the Museum on Main's newest exhibit, "The Super Parents: Caring for Children with Special Needs." (Photo by Deanne Fitzmaurice)

Museum on Main has opened a new exhibit chronicling the constant care provided by families for their children with chronic medical conditions.

"The Super Parents: Caring for Children with Special Needs" is on display through May 26, featuring photographs by Pulitzer Prize-winning photographer Deanne Fitzmaurice.

She shadowed families living in 10 cities throughout California whose children have conditions ranging from type 1 diabetes to neurofibromatosis. The photographs are accompanied by first-person descriptions from the "super parents" themselves, documenting a day in the life of each family.

These families have much in common as they navigate a complex and fragmented system of care, from the crushing piles of paperwork, to financial stress, to long drives for appointments booked months in advance. But the most common denominator among the parents is a deep, beautiful sense of all-giving love for their children.

"The Super Parents," which was produced by the Lucile Packard Foundation for Children's health, presents the families through photography, artifacts, and hands-on interactive elements. The exhibition was developed and provided to Museum on Main by Exhibit Envoy.

Museum on Main is located at 603 Main St. For more information, call 462-2766 or go to www.museumonmain.org.

What is community worth to you?
Support local journalism.

Comments

1 person likes this
Posted by Kelly
a resident of Del Prado
on Apr 5, 2019 at 11:59 am

I'm proud of Pleasanton for highlighting special needs children and their parents/caregivers. Shining a light on those who give tirelessly every day so their children have a "normal" life helps to bring awareness, understanding and compassion.


Like this comment
Posted by Michael Austin
a resident of Pleasanton Meadows
on Apr 7, 2019 at 8:09 pm

Question:

Did any of these super patents engage in substance abuse during pregnancy?


Sorry, but further commenting on this topic has been closed.

Stay informed

Get daily headlines sent straight to your inbox.

Differentiating Grief from Clinical Depression
By Chandrama Anderson | 0 comments | 1,615 views

Jammed BART trains demand innovative thinking moving forward
By pleasantonweekly.com | 9 comments | 1,078 views