Lyme disease: a real threat in the Tri-Valley

Diagnosis can be difficult as suffering hits muscles, joints and brain

Julie Posey Yorn was healthy and outgoing all her life, a two-time Miss Marin in her single days and later a finalist when she competed as Mrs. Pleasanton in the Mrs. California contest in 2004.

The statement she wrote for that pageant stated: "The world and me, always changing always evolving. Reaching for the stars with determination and drive. Even at my most darkest, challenging times, knowing there is always a shining star to light my path. And remembering that beauty comes from the inside out."

Now, at 44, married to Jonathon Yorn and the mother of 7-year-old Talan, Julie is living through some of her "challenging times." Since Talan's birth in 2007, Yorn has been fighting Lyme disease, which has proved traumatic to live with and was a nightmare to diagnose.

"I had a C-section and got very sick with a fever and rashes and an infection," Yorn said. "When your immune system drops, the Lyme can really come out. The C-section seemed to trigger it."

She was exhausted, as are all new mothers, but her energy never returned.

"It was literally debilitating fatigue, with high fevers, just really severe flu symptoms and swollen glands," she said. And debilitating nausea.

Doctors felt it was a postpartum problem, she said, and they experimented with medications. She saw a psychiatrist who suspected chronic fatigue syndrome. Then her general practitioner sent her to an infectious disease specialist.

"A test for Lyme came back negative," Yorn said. "I was told by my doctor to suck it up and deal with it. I said, 'OK this is my life, I guess I will just deal with it.'"

At that time she worked as a financial adviser, struggling to start her business as well as be a wife and mother.

"It took out my immune system. I would get violently ill for weeks and couldn't recover," she remembered.

Her feet swelled, and her headaches were so bad she couldn't see.

"I told myself it was because I was getting old," she said.

She pursued a healthier lifestyle, taking care with what she ate.

"I tried a gluten-free diet, I juiced," she recalled. "I reached out to my doctor and said, 'Please I'm getting worse.'"

She took time off on disability, then changed jobs, going into the title business with a positive attitude.

"I thought OK, this would be fine, I can do this, and it was five months into it, last May, when I realized I couldn't do this anymore," Yorn said. "I noticed that I would come home from work and couldn't move."

She paid for a doctor outside of the Kaiser system, which she'd been using, who said it might be fibromyalgia since she was getting stabbing pains at 52 nodules in her body.

"They put me on a protocol that nearly killed me, depleting me of energy," she said. "The doctor said this was the cysts in my body breaking up and causing my pain. But six months into it, it was getting worse."

Then Yorn began to experience neurological problems.

"I realized when I was working, I wasn't remembering things. I met with a client, then a week later didn't remember the meeting."

She and Jonathon had always been active -- surfing, doing martial arts, skiing.

"Now I was having difficulty walking," she said. "I can't feel my hands, I struggle cooking meals. Part of it's cognitive because I can't multitask."

"I used to be able to do 10 things at once, now I struggle to do one thing at a time," she added. "I am burning all of my meals and cutting my hands, burning my hands."

She began to suffer optical migraines, and by last July her symptoms had magnified and she went into severe anxiety.

In September her mother, who lives in Novato, made her an appointment with a specialist in Marin, and Yorn presented him with her two pages of symptoms and history of seven years' suffering. At his questioning she remembered a recluse spider bite in 2000, after which she took seven days of antibiotics. The doctor did a Western blot test for Lyme as well as testing for four different viruses related to Lyme.

"The tests came back, and I was really high in all my numbers," Yorn said.

At last she had a diagnosis: Lyme disease.

In California, Lyme comes from the bite of the black-legged deer tick, Ioxides Pacifica -- a tiny tick most would not notice, explained Sue Savod, who is helping to organize a Lyme disease advocacy and awareness group in the Tri-Valley. Savod was perfectly healthy until a tick bite in the Las Trampas hills in Danville 12 years ago.

"This is not your average dog tick. As most Lyme sufferers will tell you, the danger lies in not just the Lyme disease itself, but in the little known co-infections that accompany it," she wrote in her Lyme Log, which chronicles her journey with the debilitating disease.

"Ticks are nasty creatures who need blood meals to live. First they bite the possum, then the rat, then the fox, and then you. Like using a dirty needle, all manner of parasitical filth besides Lyme is passed along. Diseases called Bartonella, Babesiosis, rickettsia, erlichiosis, anaplasmosis," she continued.

She noted that Lyme disease is found in every state in the nation and the offending ticks have been found in every county in the Bay Area, except San Francisco.

"Lyme, along with being the No. 1 vector-borne disease in the U.S., is at epidemic proportions, according to the Centers for Disease Control (CDC). And growing," Savod said. "We've all heard of AIDS, and West Nile virus, and so have our doctors. The incidence of Lyme is 10 times those, and those are only the reported cases. Lyme doctors estimate 200,000-300,000 people in just our state alone with undiagnosed Lyme."

Savod also decries the actions of the medical profession in treating Lyme.

"There is a pitched professional battle going on between the IDSA (Infectious Disease Society of America) and ILADS (International Lyme and Associated Diseases Society). These are premier professional organizations with great political influence," she explained.

"The definition of Lyme propounded by IDSA doctors is limited to mostly arthritic aches and pains, and is 'easily cured.' That was, and ever will be the definition unless the Centers for Disease Control starts listening to the ILADS doctors and researchers who treat Lyme every day," she said.

"Equally important, co-infections are almost always present. These specialists know the destruction left by doctors who miss the diagnosis as the bacteria multiply to a chronic state within our bodies, and are thus much harder to destroy. There is now overwhelming evidence that the disease is not cured by two weeks of antibiotics. But it's hard to teach an old dog new tricks."

Savod and Yorn both noted problems with insurance coverage.

"Lyme is expensive to treat," Savod said. "Most insurance companies find a way to stop paying, citing CDC definitions of Lyme, and Lyme-literate physicians don't take insurance. They have chosen to better use their time treating chronic Lyme, rather than being entangled in chronic battles with insurance companies.

"To the uninitiated, all this sounds like we're hypochondriacs -- there's even a report from CDC staff that coins a term describing us: 'Lyme loonies.' We tend to be loonies until you get it, and then you come to understand. You learn about the under-diagnosing, the ignorance, and the political games the Infectious Disease Society doctors are playing with the support of the CDC," she continued.

"Indeed, many states punish doctors who treat Lyme with long-term antibiotics. That is slowly changing. State legislators, many who have had Lyme or someone in their family has, are championing new legislation that brings Lyme to the forefront. New York Gov. (Andrew) Cuomo just signed such a bill. Why? Because his daughter had been infected with -- you guessed it, Lyme disease."

"For me, the mental part has been worse than all the physical pain," Yorn said. "It is like being a prisoner within yourself. I went three months without sleeping. I'm a firm believer in God, and I kept talking to him, saying, 'Get me through this, get me through this, get me through this.'"

More tests found co-infections, and Yorn noted that Lyme disease mimics many other diseases out there, making it especially difficult to diagnosis and treat.

"I couldn't talk, I couldn't walk," she said. "But now I am coming back."

Before the disease struck, Yorn was an active member of Pleasanton Rotary and an ambassador with the Chamber of Commerce.

Other diseases might elicit sympathy, but not everyone knows about the tribulations of Lyme sufferers.

"The hard part for me is everyone says, 'You look fine,'" Yorn said.

Yorn and Savod tell those who suspect Lyme to insist on a Western blot test from IGeneX in Palo Alto. Also get tested for co-infections.

"Do not wait. Find a doctor who will listen," Savod said.

"I want people to get the help they deserve. I want to build awareness," Yorn said. "This is a huge healthcare issue, and there are multiple people right now in Pleasanton that have Lyme."

Her son Talan is among them. She had her whole family tested, and Talan tested positive.

"They now say it can be transferred from mother to child in utero," Yorn said. "We've already seen one doctor but to be honest I'm very discouraged. The appointment was $525, and they sent me away with no real treatment plan. So I'm now going to hopefully find another option. We have to treat now, before he is fully symptomatic."

She noted that many people are walking around with Lyme disease but show no symptoms because their immune systems are strong. But an illness -- or a C-section -- can change this.

"If you are diagnosed within a year of being bit, you can be cured," Yorn said, "but I'm not one of those."

Twelve years after her tick bite, Savod's last tests were clear for Lyme although her inflammation test was still high and she still has some joint pain, so she is continuing one more round of medication.

"Please be aware, take precautions to cover skin exposed to ticks, and check yourself after being outside," she warned. "Don't rely on DEET -- Dr. Eva Sapi of the University of New Haven, a Lyme 'veteran' and now a Lyme researcher, has discovered that ticks walk right over DEET and just keep on going."

"Spring is tick nymph time," Savod pointed out. "They are the most dangerous of all. They need blood meals to survive and mature. If you do get bitten by a tick, or suspect you might have Lyme disease, advocate for yourself with your doctor."

Learn more about Lyme disease

* Sue Savod's complete "Lyme Log"

* Documentary "Under Our Skin" -- Available at

* "Why Can't I Get Better? Solving the Mystery of Lyme and Chronic Disease" by Richard Horowitz

* "Cure Unknown: Inside the Lyme Epidemic" by Pamela Weintraub



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1 person likes this
Posted by citizen
a resident of Birdland
on Apr 9, 2015 at 8:21 pm

I received a lyme disease shot to help prevent the disease years ago.. but the shot is not available for humans now? My dog can get the preventative shot. I do not know why it was stopped for humans. This was with Kaiser years ago. Maybe someone knows.

3 people like this
Posted by Damon
a resident of Foothill Knolls
on Apr 10, 2015 at 12:32 am

I think that this article is exaggerating the threat of Lyme disease in the Tri-Valley a bit. For the most part, Lyme disease is an East Coast problem. Of over 20,000 cases of Lyme disease in the US in 2012, only about 60 of those cases were in all of California. In contrast, tiny Connecticut had around 1,600 cases, and Pennsylvania had about 4,100 cases. Yes, you should take precautions against ticks, but statistically speaking your chances of getting Lyme disease in California are pretty small.

9 people like this
Posted by Lisa
a resident of Vintage Hills Elementary School
on Apr 10, 2015 at 8:26 am

Dear Damon,

WHAT!, you are clearly uninformed. My cousin has it and was ridiculed for years as being lazy. Three years ago my sister got it. She was bit by a tick in Scotts Valley where she lived (lots of deer in CA!) and told the doctor who boohoo'd her and didn't treat her. She finally found a doctor who would treat her, but alas, time was critical and it had been too long. She suffers horribly and had to quit her 28 year career because of the final symptoms of brain fogs, loss of memory retention, etc. etc. THEY LIVE IN CALIFORNIA.

3 people like this
Posted by Cholo
a resident of Livermore
on Apr 10, 2015 at 8:36 am

Lyme disease in California: Web Link

1 person likes this
Posted by Michael Austin
a resident of Pleasanton Meadows
on Apr 10, 2015 at 8:40 am

Michael Austin is a registered user.

A dozen years ago or so, I was running in the hills with a friend at Rancho San Antonio County Park in Cupertino.

I felt an uncomfortable pressure on my right thigh just above the knee, I stopped to have a look, It was a tick, it had penetrated my thigh, its head was fully under the skin.

Using my thumb nail and forefinger nail I gently pulled on the ticks body and extracted its head from my thigh. I had used this method because just weeks earlier I had read a story on Lyme decease and how to extract a ticks head and its body.

Had the head remained under the skin, I may well have contracted Lyme decease. To this day, I believe I dodged a bullet.

1 person likes this
Posted by Paul
a resident of Danville
on Apr 10, 2015 at 8:41 am

It is important to note that deer ticks which transmit lyme disease do not fly; they get on you when you brush against some low-lying vegetation, especially grass. If you stay on trails and avoid vegetation, you will avoid lyme disease.

Since most trails have not yet been cleared, there might be a lot of overgrowth. So, if you happen to brush against any vegetation, check yourself for a very small tick and remove it. It takes several hours before a tick can dig into your skin, so when you get home, be sure to check your skin carefully. Especially be aware of the "hidden" areas of your body: crotch, behind the ears, hair, etc.

One more caution: if you let your dog run off trail, a tick can get on it. When you pet or rub against your dog the tick can transfer to you, or the tick can leave the dog on some furniture and crawl on you.

Follow the above and your chance of getting lyme disease will be close to zero.

2 people like this
Posted by Rob
a resident of another community
on Apr 10, 2015 at 9:33 am

I pretty much agree with Damon. While this lady contracted Lyme disease and I'm not invalidating her experiences, there is nothing to get in a huge panic over. Lyme disease is not as bad as on the East coast and we can thank the Western Fence Lizard for that. Studies at UC Berkeley have even shown how this lizard helps cleanse up to 90% of juvenile ticks; the lizard has a protein that does something to it.

Web Link

1 person likes this
Posted by Damon
a resident of Foothill Knolls
on Apr 10, 2015 at 9:38 am

Here's what the Center for Disease Control (CDC) says about the distribution of Lyme disease in the US:

"In 2013, 95% of confirmed Lyme disease cases were reported from 14 states:
New Hampshire
New Jersey
New York
Rhode Island

So the rest of the 50 states, including California, made up less than 5% of all Lyme disease cases in the US in 2013. What percentage of the total did California make up? California had 90 confirmed cases of Lyme disease in 2013 out of a 2013 total of 27,203 cases nationwide. That works out to 0.3%. California, despite its large population and despite the many national and state parks we have and its many campers and hikers, had only 0.3% of all confirmed US Lyme disease cases in 2013.

All this information is on the CDC website below as well as a nationwide map which graphically shows the distribution of Lyme disease in the US. As you can see from the map, and as I've already stated, Lyme disease is predominately an East Coast problem. That's not to say that you can't get Lyme disease in California, but it is rather rare.

CDC webpage on distribution of Lyme disease in the US: Web Link

1 person likes this
Posted by Larry Waelde
a resident of Livermore
on Apr 10, 2015 at 9:41 am

Currently trying to evaluate between my Kaiser diagnose of No Lyme verse my independent doctor's diagnose of Lyme. Western Blot test was positive but Kaiser claims this result was a false positive. Anyone know of a Lyme Specialist in the East Bay?

Like this comment
Posted by Helen
a resident of Vintage Hills Elementary School
on Apr 10, 2015 at 9:51 am

I received a tick bite while hiking on the Pleasanton Ridge last November.
According to the Alameda County Vector Control, there are ticks on the ridge who carry Lyme Disease. Please be sure to take antibiotics as soon as you find a tick bite. If treated ,early before the infection takes holds, can prevent a lot of heartache. You can not tell which tick has the infection. Best to treat every tick bite as if the infection is present.

I was fortunate I was treated at Valley Care Emergency Room, where the excellent doctors knew exactly what to do.

Like this comment
Posted by Damon
a resident of Foothill Knolls
on Apr 10, 2015 at 10:38 am

@Larry Waelde: "Anyone know of a Lyme Specialist in the East Bay?"

You've got as much chance of finding a good Lyme disease specialist on the West Coast as you do a good bagel shop or pizza joint.


4 people like this
Posted by mrs bob
a resident of Pleasanton Valley
on Apr 10, 2015 at 10:38 am

Doesn't matter about statistics fools! There clearly ARE cases here. So if this article just helps one person to be more informed then it's done its job. I didn't know half of this. .. so I'm glad I read it & hope the lady makes a full recovery.

10 people like this
Posted by Jonathon
a resident of Livermore
on Apr 10, 2015 at 10:41 am

Damon, I do appreciate you taking the time to get information from the web and the CDC. It is very easy to discredit this epidemic as an East Coast problem. Unfortunately unless you have it or know someone that does you will probably never understand the ramifications and magnitude of this disease and how it wreaks havoc on lives. The issue with the CDC numbers is that there is so much misdiagnosis and in correct poor testing. My wife Julie Yorn who the article is written about is connected to many Lyme groups in California where thousands of people in California, yes California have this disease. If it is so rare I find it laughable both my wife and son have it and we know many people personally in California who are fighting this battle as well. If you want to stay abreast and be an advocate for or against the cause please do more research. This is more than a just a little tick and a rare case. Stay tuned as more and more evidence is coming out just like AIDS started out slow...the whole US and California will know about this epidemic in the near future.

1 person likes this
Posted by Hotslide
a resident of Oak Tree Acres
on Apr 10, 2015 at 11:09 am

Damon, now you know what it is like to have a discussion with liberals. You stated some statistics, did not say that it was not present in California, just that it is not as common here. With libs, facts don't matter, they never come into play or are quickly dismissed. The greatest example of this is gun control. In the past decade, serious crimes involving guns are down 37%, while the number of firearms in the hands of citizens has MORE THAN DOUBLED. Even the police chief of Detroit states that the drastic reduction in gun crimes is directly related to the passing of concealed carry laws in Michigan. This does not mean a damn thing to a lib. Back to Lyme disease.

4 people like this
Posted by Mike
a resident of another community
on Apr 10, 2015 at 11:19 am

DAMON..........did you read the article ???? The CDC IS CROOKED you can not back your argument with 2 year old information that was produced by a crooked organization.........the CDC has been lying about the TREATMENT DIAGNOSIS , as well as the CORRECT % of the population that is currently affected....Lyme disease is currently one of the worst pandemic that this world has seen........and yes it is WORLD WIDE........there are currently 822 new cases diagnosed daily in the world today and that number would be 10x if the CDC would just tell the truth............but this is a political battle because big pharma wants to produce the cure so nobody will share info ..........there are major battles going on between the CDC IDSA Vs ILADS and us..........the CDC has already been caught lying to the population and written documents stating their lies copied so they can't get out of it..........but getting them to change and come clean is another issue ........ This issue is HUUGE and not to be taken lightly one tick is all it takes and your world will be upside down for years to come NO you can not cure Lyme in a 28 day cycle like the CDC wants you to believe.........and NO KAISERS tests for Lyme are crap and will always come back negative .......the ONLY test that is realiable is the western blot from Igenex......I have bee battling this disease in my whole family for a decade now and it is not fun $200k later I have one son with a negative test three more to go...........This is not a game you want to tick checks EVERYTIME ......

1 person likes this
Posted by a wakeup call
a resident of Amador Estates
on Apr 10, 2015 at 11:39 am

Timely post as I just returned from a Del Valle hike with a friend.

After our hike, he noticed a tick crawling on the front of his white shirt. I was wearing a black shirt and dark pants and it was obviously more difficult to do a thorough tick-check.

This was a wakeup call to wear light colored clothes when hiking for obvious reasons.

4 people like this
Posted by Mike
a resident of another community
on Apr 10, 2015 at 11:46 am

@larry waelde ..........yes Larry there are many good Lyme specialists in the east Bay Area ........we call them LLMD's Lyme Literate Medical Doctor of which I can guarantee you DAMON is non of which ......he should not b giving out bad advice or talking out of his ass especially on medicL advice which he CLEARLY knows NOTHING about ...........Raj Patel is in a redwood city .......Steve Harris is also in redwood city.........these are two of the best I would recommend there are several more in sf and beyond.........need to search for LLMD...........GOOD LUCK LARRY WAELDE ........

10 people like this
Posted by Lymiesince2003
a resident of West of Foothill
on Apr 10, 2015 at 12:01 pm

Well, what a hot topic for all of us - believers and people with their heads in the sand who also happen to believe everything the Gov't tells them. Our home backs up against the Pleasanton Ridge forest and there are tons of ticks up here. I see them every single day, in my yard, on my dogs, in my house as a result of being carried in by the dog or cat. So, yes, there are ticks and many many of them. Not only do the deer carry them, but all the other wild critters that live up here: turkey, raccoons, skunks, mice, rats, squirrels, and even birds! Who happen to be able to fly anywhere they want!

I was diagnosed with Lyme disease before I ever know it existed - I was bitten at home/on the property. I never saw it on me because it buried itself in my back at the crease where my arm and back connect. I got very sick, rash, fever and so on. I went to two different doctors, one of them actually did check for lyme, MS and lupus (my inflammation was through the roof!). Everything came back negative which is not uncommon when first infected. I battled with the destruction of this disease for years because no one could figure out what was happening. If only my labs were sent to IGenix in Palo Alto in the first place (where I was ultimately diagnosed), I would not have chronic/late stage lyme today, which I got here in Pleasanton.

I am so grateful for this article and hope that it will continue to spread awareness that this is ultimately a deadly disease, if left untreated, it is disabling, and long term has many mental health ramifications. I hope that this will blow the myth out of the water that this is NOT just an East Coast disease. DO NOT BELIEVE WHAT YOU READ there are plenty of nay-sayers for some reason but I guarantee you it has to do with politics/money, and who knows what. Why would anyone want to have Lyme? Or say they have it. It's an awful disease and comes with many co-infections.

The insurance companies do not wish to pay for treatment beyond 2 weeks of anti-biotics. In my case, I went and sought standard medical treatment but the protocol to further rule out Lyme was not established or followed -- the protocol to find out what was happening in my body was non-existant; I was given prednisone to deal with the inflammation and bulls-eye rash (a tell sign you have lyme).

IGenix lab work is more sensitive and more expensive so it basically boils down to medical coverage; at least if the Dr would say, you need to go to Igenic and pay yourself, I would have done it then. If you suspect you have lyme, ask your Dr to send your labs to Igenix so you know exactly what is going on from the experts in these types of testings. If your doctor does not listen to you, like most don't regarding Lyme, then find a Dr that will. Yes, there are Drs who will test for Lyme and know how to treat it. One is Dr John Toth in Concord, CA. Another one is Dr Debra Metzger in Los Altos, and there are indeed more now.

The cost to treat my Lyme has reached up to $100k! I can work now, I feel great -- but it was not like that for 6 years. I was a mess (without going into detail--but similar to the article).

Lyme disease is alive and well in the TriValley and in California in many places, in just in the Ridge. I still have lyme in a type of remission state but it can always flare up so I do have to keep my immune system strong and stress at bay.

Like this comment
Posted by Roxy
a resident of Stoneridge
on Apr 10, 2015 at 2:50 pm

The only doctor I have heard of that treats Lyme in the Tri-Valley is Dr. Lynne Milke in Pleasanton. Very thorough...not cheap!

3 people like this
Posted by Mom of 3
a resident of Stoneridge
on Apr 10, 2015 at 3:01 pm

I was diagnosed 2 years ago with a western blot that was through the roof positive. Since then i have been in treatment with Dr. steven Harris in Redwood City. My latest western blot came back still positive yet much better. I suffer from memory loss, anxiety, knee swelling and pain, and many other symptoms to say the least. I live in Muirwood close to the ridge and this is a very REAL disease and we have spent thousands of dollars out of pocket to see a lyme literate doctor. Please do your research and you will find the truth
Ps my doctor believes i contracted lyme from my own neighborhood as i am not the only lyme positive patient from Muirwood area

5 people like this
Posted by lymewarrior
a resident of Pleasanton Meadows
on Apr 10, 2015 at 4:37 pm

Hotslide, so because we have Lyme and are sick that makes us liberal? All those that are severely suffering want and deserve treatment that our insurance should cover it and does not. As far as guns, there is no place for a gun discussion on a lyme site. You are barking up the wrong tree. If you are going to speak on something and mock others that are in a battle for their lives, fighting a political and financial war they did not ask for, get the facts straight and stop taking your issues out in a place like this. It's people like you that cause even more distance among the sick. This isn't about conservatives or liberals. Lyme doesn't care who you are, it can and will take anyone. This article is meant to help build an awareness and maybe even make you aware and use precautions so you don't end up suffering. What would you do if you got Lyme or were sick and no one would help you? Just saying? It's not about liberalism, you really missed the mark.

6 people like this
Posted by Martin
a resident of Birdland
on Apr 10, 2015 at 4:44 pm

I just read an article on line on MSN about a popular singer, song writer who did have the very same problems as Julie with Lyme disease and is now on a campaign to increase the awareness of Lyme disease. Her name is Avril Lavigne. I would thank that if you search on line for her you could find out how to contact her.

Like this comment
Posted by Damon
a resident of Foothill Knolls
on Apr 10, 2015 at 5:09 pm

Well, since everyone here has gotten themselves worked up about Lyme disease, might as well add that there have also been rattlesnake attacks up on the Pleasanton ridge and, yes, you are more likely to get bitten by a rattlesnake than contract Lyme disease if you're hiking on the trails.

10 year old Alisal Elementary Student attacked by Rattlesnake: Web Link

Rattlesnakes: Web Link

Like this comment
Posted by Damon
a resident of Foothill Knolls
on Apr 10, 2015 at 7:46 pm

@Andrea : "The center for Disese control and prevention estimate there are nearly 325,000 new cases each year. These are only the reported cases!"

Where did you get that number? The CDC website that I linked to earlier reported approximately 22,000 confirmed cases of Lyme disease per year in recent years for the entire US. And, again, cases in California make up only about 0.3% of this total.

9 people like this
Posted by Sue Savod
a resident of another community
on Apr 10, 2015 at 10:17 pm

Sue Savod is a registered user.

Two things. If you will go to "CDC newsroom Lyme Disease" you will see a press release dated Monday, August 9, 2013 by the CDC showing 325,000 cases a year. And if you read further, this statement says that the true number of cases may be 3 to 12. X that number. You are looking at a possible number of 3.9 million. Furthermore, even the CDC says that all cases are not reported. To report a positive case, your doctor must show a CDC positive Western Blot antibody test for you. Those that are too sick to make antibodies don't get counted.
To answer the first commenter's question, there was a Lyme vaccine made by a group of Infectious disease doctors. Many people vaccinated started getting Lyme symptoms that were permanent. In fact later investigation found that 1/3 of people have a genetic marker that reacted to the vaccine and those were the ones getting symptoms. The pharmacy company was being sued and took it off the market, even though the developers wanted to keep $elling it.
And Damon and Mudslide, even conservatives get Lyme disease, so my advice to you is to stay out of the woods (and grasses).
You might even get it in your own backyard.

7 people like this
Posted by Tania
a resident of another community
on Apr 11, 2015 at 11:49 am

Tania is a registered user.

Reported Lyme Disease numbers are so low in California because doctors don't test for it; they will tell you we don't have Lyme around here. People are misdiagnosed as having Fibromyalgia, Parkinsons, MS, Arthritis, Mental Illness, Chronic Fatigue ...In the rare instances where tests are done, the Elisa is used which is only 50% effective. My daughter contracted Lyme Disease in Danville 14 years ago. We asked to have the tick tested at the time but were told we didn't need to worry about it around here. Fourteen years of fatigue and occasional rashes, migraines, and joint pain became debilitating after a series of traumas took my daughters' immune system down. Around the same time our daughter was infected, another girl from her elementary school was infected. Now we know of five kids from San Ramon High School that have been diagnosed with Lyme.

"Paul Mead, chief of epidemiology and surveillance for the CDC's Lyme disease program, said under-reporting occurs simply because some people never seek medical care, and many physicians do not report cases. The CDC's under-reporting studies serve as confirmation of recent increases in reported cases, Mead said. Public health officials in Marin, Santa Cruz, Alameda and Mendocino counties agreed that not everyone diagnosed with Lyme disease is counted as a confirmed case."

It is important to remember that the Western Blot is the most reliable test but that your body needs to build up antibodies to the infection before the test can be accurate. You can't get a test right after you are bitten, but you can get the tick tested. Igenex lab will test ticks not only for Lyme but five other possible co-infections. Our daughter also has Babesia from the same tick. The scary part; studies are showing that Lyme can be transmitted from mother to fetus, and that it can be sexually transmitted. Several people in our Lyme group have partners that also have Lyme. Even scarier, the blood banks don't test for Lyme. For more information go to and

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